January 22, 2010
I had to take Rachel back to the pediatrician today. Since Monday, she has been doing this weird cough/gag thing at night. Last night, she actually threw up twice after doing it. It really sounds like she can't breath and that she is choking. The pediatrician said there is a medicine, called Reglan, that may help her reflux but she wasn't comfortable giving it to Rachel because of her intestinal surgery and liver issues. She told me I needed to go see the gastroentologist to see what he wanted to do. I now have to wait until Monday to try and finagle an appointment. They told me the first time they could see her was the end of February. Yeah, that isn't going to work, sorry. She did give us the go ahead to increase her Prevacid dosage to twice a day.
That drug is a pain in the butt to give her. You have to dissolve it in water in a syringe and then squirt it in to her mouth a half hour before she is to eat. Most of the time she spits the meds out or chokes on it and then wants to eat right away. It worked well for a month and a half and now it doesn't seem to be working any more. I can only hope MORE of the drug helps even though I don't like the idea of giving her more. She is on thickened formula, sleeps on a 30 degree angle, and sits up for a half hour before we can even get her close to lying flat. I am out of ideas and it seems like the pediatrician is too. I can't even do tummy time, let her play flat on the floor or put her in her swing. What is the next step? I have no idea but whatever it is, it better work because hearing your child choke at night is a horrible sound.