Most days I am completely fine with Down syndrome and Rachel. Other days, like ones recently, Down syndrome gets to me. I have a hard time knowing what is typical toddler behavior and what may be a "special needs" issue we need to tackle. When Rachel was in the hospital a couple weeks ago, she didn't want to eat anything. All she wanted was her milk and that was fine by me. I could tell she wasn't feeling well. Who wants to eat when they are sick? When we came home, things seemed like they were improving. She was starting to eat some foods again. Then this weekend she just really decided she doesn't have much interest in solid foods at all anymore. She will eat cheerios and some goldfish crackers, but getting her to eat anything else is just frustrating. She'll pick up a piece of whatever it is and throw it off the tray or she'll put it in her mouth on her tongue and just let it fall out. She may even chew a little bit and spit it out.
I don't understand. She's never had a sensory issue before with food so I try not to let my mind go there but having a child with Down syndrome makes you automatically jump to "what's next on the list of things to work on." I try to let my rational mind take over - this could be completely normal. She is teething. She is still getting over being sick and coughing up stuff from her lungs. But the other side of my mind is freaking out, jumping up and down, screaming "OMG, sensory issues! Call the OT, call a food clinic, call the nutritionist! Send help! SOS!" The fact that she now weighs as much as she did at her 12 month check up in September makes me scared too. Those NICU days of counting grams never will leave me I'm afraid. These issues (of mine) are always going to be there I think. I try hard to overcome them but it's so hard sometimes. I just hope Rachel gets through this phase and starts being my munching champ again. Making food just to pick it up off the floor meal after meal can make you go a little crazy.